Tomorrow is knee surgery take 2.
We have a plan...
It is scary for us, but we feel confident that there is a plan in place.
Sooo... at 6:00 am Madi and I will arrive at Hotel D and head to the 8th floor for her surgery. We are staying overnight this time to have help with pain management for the first 24hrs.
The last time we visited the 8th floor was to confirm that her cancer was in fact, pure germinoma...
I don't want to go back... I am SURE Madi does not either... although.. in true Madi form, she smiled and said:
"Great we will get to see people we know!" I reminded her we would probably not be on the 10th floor for recovery, but I assured her if she was up to it she could come say hello to the nurses and Hannah our favorite care life specialist. :)
Panic attacks are back daily for me and all of us are struggling with sleeping.
My little girl is having a hard time, her heart must be hurting and I cannot even imagine what is truly going on inside her mind. This makes my heart hurt... I strive to be positive for all of them, Madi, Ashlyn and Jason. But I am weary.
I was literally up all night last night and I prayed and prayed (not something I have been great at for myself in the last 8 years). I can pray for others, but for me, I know I fall short so I struggle to ask. My prayers are for my Madi, but they are also for me... my heart is broken and scared and I am so so done with this race. But, for her, for Ashlyn and for Jason I will keep running.
Please keep our little Madi Moo in your hearts tomorrow, surgery is at 7:30.
Love and many thanks to all of you for all you do for our family.
We got this...
We have a plan...
It is scary for us, but we feel confident that there is a plan in place.
Sooo... at 6:00 am Madi and I will arrive at Hotel D and head to the 8th floor for her surgery. We are staying overnight this time to have help with pain management for the first 24hrs.
The last time we visited the 8th floor was to confirm that her cancer was in fact, pure germinoma...
I don't want to go back... I am SURE Madi does not either... although.. in true Madi form, she smiled and said:
"Great we will get to see people we know!" I reminded her we would probably not be on the 10th floor for recovery, but I assured her if she was up to it she could come say hello to the nurses and Hannah our favorite care life specialist. :)
Panic attacks are back daily for me and all of us are struggling with sleeping.
My little girl is having a hard time, her heart must be hurting and I cannot even imagine what is truly going on inside her mind. This makes my heart hurt... I strive to be positive for all of them, Madi, Ashlyn and Jason. But I am weary.
I was literally up all night last night and I prayed and prayed (not something I have been great at for myself in the last 8 years). I can pray for others, but for me, I know I fall short so I struggle to ask. My prayers are for my Madi, but they are also for me... my heart is broken and scared and I am so so done with this race. But, for her, for Ashlyn and for Jason I will keep running.
Please keep our little Madi Moo in your hearts tomorrow, surgery is at 7:30.
Love and many thanks to all of you for all you do for our family.
We got this...